Department of Special needs and Inclusive education

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http://etd.aau.edu.et/handle/123456789/57

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Browsing Department of Special needs and Inclusive education by Author "Abebe Yehulawork"

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    The Lived Experience of Mothers Having Children with Autism Spectrum Disorder, in Addis Ababa
    (Addis Ababa University, 2019-06) Dagmawi Alemnh; Abebe Yehulawork
    Autism Spectrum Disorder is a complex neurological disorder which causes impairments in multiple areas of development including social interaction, communication, and behavior. In Ethiopia mothers of children with autism have conventional responsibility and challenge in taking care of their children with autism compared to other members of the family. The study investigates the lived experience of mothers having children with autism spectrum disorder (ASD) regarding the Mothers’ reaction after the detection of autism in their children, mothers main challenges in nurturing and caring their children with ASD, the mothers’ with ASD children support from the community and schools and the mothers feeling about the future life career of their children with autism. Qualitative research method on particular emphasis on phenomenological research design was employed to conduct the study. Semi-structured interview was used as a data collection instrument. The targeted institutions were six regular schools and one autism center. A total of fifteen mothers having children with ASD were selected purposively as key informants. The data analysis was carried out based on the thematic areas organized in interview guides as leading questions. In addition, as a part and parcel of the study two coherent case stories were prepared. The finding shows that majority of respondent mothers/guardians did believe that they have been overburdened in taking care of their children with autism. They further confirmed negative attitude of the people and non-availability of specialize service coupled with the scarcity of trained human power seriously aggravated their challenge and complicated their duty and responsibilities in taking care of their children with autism. Based on the finding of the study, the involvement of the concerned federal ministries in promoting and coordinating interventions needs to be available for mothers/ guardians and their children with autism have been recommended.
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    The Role of Parents of Children with Developmental Disability for the Effectiveness of Center-Based Rehabilitation Services: The Case of Addis Guzo Centre
    (Addis Ababa University, 2023-07) Fikiru Bedasa; Abebe Yehulawork
    Rehabilitation services for children with developmental disability determine the interventions chosen by a multidisciplinary team with involvement of parents. Most of the needs for rehabilitation go unfulfilled in countries with low and moderate incomes, and more than half of those who need rehabilitation treatments do not receive them in Ethiopia. The purpose of the study was to examine the role of parents of children with developmental for the effectiveness of center-based rehabilitation services. Qualitative approach was applied a phenomenological design to conduct the study. The study was conducted at Addis Guzo Center wich wich is located in Addis Ababa, Lideta Su-city. Observation, interviews and document analysis were used to collect data. Fourteen parents of children with developmental disability were purposively selected as the study participants. The data was analyzed by categorizing the data into four thematic areas. The study findings showed that parents were not initially aware of their responsibilities and roles in providing rehabilitation services; however, the professional support and awareness-raising services that the professionals of the center provided for them encouraged their active involvement. Additionally, the study findings identified that rehabilitation services play critical roles in supporting children with developmental disability, and the involvements of parents in the process of rehabilitating children with developmental disability contributes to holistic progress of a child including improvements in their day to day activities, social inclusion, and advocate their fundamental rights. Rehabilitation centers should involve parents in providing rehabilitation services for children with developmental disabilities to assure expected outcomes. Keywords: Institution-based rehabilitation, Inter-Professional Collaboration, developmental disability, Rehabilitation, intervention, Parental role