The Lived Experiences of Women Affected By Leprosyresiding in Woreda 01 Zenebework Area, Addis Ababa: A Phenomenological Study
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Date
2024-12-01
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Addis Ababa University
Abstract
This phenomenological qualitative study explores the lived experiences of women affected by
leprosy residing in Woreda 01, Kolfe-Keranyo Sub-city, and Addis Ababa. The study delves into
these women’s knowledge and perceptions of leprosy, their interactions within social networks,
accessibility and treatment within public and traditional institutions, and the coping mechanisms
they employ to navigate daily challenges. Using purposive sampling, in-depth interviews were
conducted with 15 women with leprosy and 7 key informants, including social workers, health
professionals at Alert hospital, and officials from relevant NGOs and government sectorsin
Woreda 01. Additionally, Observationwas used to collect data. The data was analyzed through
phenomenological analysis to capture the subjective experiences of affected women. Findings
reveal a knowledge gap between scientific understanding and participants’ beliefs about
leprosy's causes and transmission. The result of the study also demonstrates that women often
experience strained relationships within their close social networks, such as family, neighbors
due to a tendency for self-isolation prompted by fear of discrimination. Many participants also
self-isolate to shield themselves from anticipated social stigma, which the community may
reinforce by excluding them from events and gatherings.If leprosy symptoms are visible, society
tends to discriminate against affected individuals in public institutions. Additionally, financial
constraints prevent them from participating in Equb or Edir. However, some women gain
strength through solidarity with peers in similar circumstances and engage in religious practices
that provide emotional support and a sense of belonging. The study concludes that the
intersection of social, economic, and psychological challenges imposes a complex burden on
affected women. To address this issue, the finding highlights the need for a robust awareness
campaign targeting both the affected and the wider community. Additionally, effective
implementation of existing policies, programs and strengthening associations that support
leprosy-affected women are suggested to enhance their access to services and capitalize on
existing coping mechanisms.
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leprosy residing