Functional Disability and Health Related Quality of Life Among Juvenile Idiopathic Arthritis Patients Attending the Pediatric Rheumatology Clinic at Tikur Anbessa Specialized Hospital, A Prospective Study
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Date
2025-04-05
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Addis Ababa University
Abstract
Background: Juvenile idiopathic arthritis (JIA) is an idiopathic inflammatory arthritis which includes different types of chronic arthritis and also extra-articular structures. It has a wide presentation and different clinical subtypes. It is a long standing disease associated with many complications including permanent damage to joints with or without joint destruction, interference with bones and growth resulting in disability and loss of function which in turn results in problem in functional ability and health related quality of life of the child. Methods: 57 JIA patients were included in cross-sectional study at Tikur Anbessa Specialized Hospital (TASH), department of pediatrics and child health pediatrics rheumatology follow-up clinic from September 1- December 30, 2024. A standard questionnaire were used to collect the datas, questionnaire of Paediatric Quality of Life Inventory (PedsQL) and the Childhood Health Assessment Questionnaire (CHAQ) to assess the health related quality of life and functional status of the patient respectively. The collected data using SPSS statistics (25) were checked, organized and analyzed. Descriptive statistics were used for presenting summary data using tables and graphs. Independent variables and outcomes were checked using mean score comparison test. Statistical significance was declared at a p-value of 10years of illness duration were found to have a lower functional status. The overall mean of the total scores of both the parental and child proxy shows that there is an optimal health related quality of life.
Key words: HRQOL, CHAQ, JIA
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HRQOL CHAQ JIA