Assessment of Population-Based Cancer Registry Data Quality in Addis Ababa, Ethiopia, 2019/20.
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Date
2020-11
Authors
Journal Title
Journal ISSN
Volume Title
Publisher
Addis Abeba University
Abstract
Background (problem statement): Population-based cancer registries systematically
collect information on all new cancer cases in a defined geographic area. The value of cancer
registries is highly dependant on the quality of the data that it collects, but the level of data quality
for the population-based cancer registry in Addis Ababa was not evaluated and well understood.
Objectives: the general objective was to assess data quality status and gaps in Addis Ababa
population-based cancer registry, Addis Ababa, 2019/2020
Methods: Convergent parallel mixed study design with the methods proposed by Bray and
Parkin, and Parkin and Bray (Eur J Cancer 2009;45:747–64) was applied to the Addis Ababa
population-based cancer registry data from 2012 to 2016. Cancer cases registered in the database
from 2012 to 2016 were included in the study, and data were sampled for re-abstracting audit and
timeliness and the sample size was 408. Polynomial and linear regression, one-way ANOVA, Nonparametric
test,
kappa
coefficient,
and
Intraclass
correlation
were
performed
using
SPSS.
Results: The coding and classification in the registry agreed with international agreements.
Annual trends in ASR for both sexes was not linear and exhibited fluctuations, age-specific
incidence curves in both sexes showed a rapid rise above middle age groups and sharp decline at
old age, ASR for three most common neoplasms in both sexes was lower than other SSA Countries
and childhood incidence rate per 100,000 showed below world reference for males 0-4 and females
age group 5-9 and 10-14. MV% was 87.2% in males and 90.2% in females, the agreement rate in
the re-abstracting audit was reasonably high, DCO% was 0.11% in males, and 0.14% in females,
the overall proportion of other and unspecified cases was 2.6%. The meantime between
identification ad registration of cases was 92 days.
CONCLUSION: the AAPBCR was comparable in using international agreements, there was a
reasonably high level of validity in the registry, with the variability of completeness and delay
registration. Budget and ownership were major gaps identified. It was recommended to improve
the data collection system to active, covering all data sources, and the FMoH to handover the
registry from owners.
Description
Keywords
Cancer Registry, Data Quality, Comparability, Completeness, Validity, Timeliness