Assessment of Health –related Quality of Life of Children with Chronic Kidney Disease on Follow up at Pediatric Renal Clinic Tikur Anbesa Specialized Hospital, Addis Ababa, Ethiopia.
No Thumbnail Available
Date
2021-11
Authors
Journal Title
Journal ISSN
Volume Title
Publisher
Addis Abeba University
Abstract
Background
Children with chronic kidney disease face lifelong increases in morbidity, mortality, and
decreased quality of life. As most of other chronic illnesses, CKD has hard impact on ill
children's and care givers life style, peer relationship, pain interference and social functioning
moreover CKD has impact on intellectual functions and behavioral characteristics including
anxiety and depression.
Objective- To assess health related quality of life of children with CKD as well as their
caregivers‟ perception on their Childs performance and to determine the factors that adversely
affect it.
Methods and material: A cross-sectional analytical study conducted using a pre coded,
pretested structured questionnaire including PedsQoL
TM
4.0 scale score generic core and family
impact module. Data obtained for demographic and clinical parameters of children and for each
domain of generic core and family impact module and data was analyzed using IBM SPSS
version 26.
Results- 105 children with CKD aged 2-18 years, 61(58.1%) males and 44(41.9%) females were
included in this study. Among the child self reported domains of generic core scale, child‟s
„school performance‟ was most affected with mean of 74.91 (SD±22.29) followed with child
„physical performance‟ 77.6±26.41. In the family impact module domains with mean also, the
most affected being „school performance‟ with 75 (SD±19.89) followed with „physical
functioning‟ with 78.13 (SD±24.96).
Recommendation: „School performance‟ and „physical functioning‟ were the most affected
domains in child generic scale and family impact modules. Optimal care requires attention not
only to medical management, but also to an assessment of health related Quality of Life factors,
that may help promote pediatric CKD patient‟s health like Implementation of a standardized tool
and Multidisciplinary approach in addressing HRQoL in all CKD patients on follow up.
Description
Keywords
Kidney disease ,Quality of life ,Children