Assessment of family care givers’ knowledge and practice of caring for children with congenital heart disease at the cardiac center Ethiopia, Addis Ababa, Ethiopia.
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Date
2021-07
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Addis Ababa University
Abstract
Background: Congenital heart disease (CHD) is one of the most common birth anomalies. Around
the world it has been estimated that children’s have one among 100 congenital deficits due to the
chromosomal abnormalities. In the last few years, the emergence of new technologies and
advanced therapy the children born with CHD can make it through the adult hood. During the
journey of treating children with CHD the role of family caregivers is significant. However, little
is known about the family caregiver’s knowledge and self-reported practice of caring for children
with CHD.
Objective: The objective of this study is to assess the family caregiver’s knowledge and selfreported
practice of caring for children with congenital heart disease at cardiac center Ethiopia
Addis Ababa Ethiopia.
Methods: The study was performed under hospital based descriptive cross-sectional study. The
data was collected from families of children with CHD at the cardiac center outpatient department
through written questioner. The questioner was administered by two trained nurses who work in
the outpatient department of the cardiac center. The returned questionnaire was checked for
completeness, cleaned manually and entered in to EPI INFO statistical software and then
transferred to SPSS windows version 25 for further analysis.
Results: A total of 377 family caregivers with a response rate of 96.91% were participated in this
study from which (45.1%) of the respondents had good knowledge towards care for child with
CHD and (44.3%) had good practice toward scare for CHD. There was a significant relationship
between family caregiver’s knowledge and educational status [AOR=0.322, 95%CI.0.186, 0.557]
and living area [AOR=19.274, 95% CI. 6.535, 56.84]. family caregiver’s knowledge towards CHD
[AOR=1.11, 95% CI 7.240, 0.002.], frequency of feeding [AOR=0.093,95%CI. 0.02, 0.53] and
living area [AOR= 57.3, 95%CI 1.07, 3048.8] were significantly associated with self-reported
practice towards care for child with CHD at outpatient department. The statistical significance
level was declared at p-value <0.05.
Conclusion & Recommendation: The results from this study showed that family caregivers had
poor knowledge towards CHD and poor self-reported practice towards care for child with CHD.
Lack of guide line for proper health education and resources are contributing factors. Therefore,
the hospital’s administrative and supportive organizations would better to provide training
regarding proper health education towards care for child with CHD and the disease condition.
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Keywords
Congenital heart disease, knowledge, family caregivers, self- reported practice