Parental Role in Pediatric Cancer Treatment Decision Making at Tikur Anbessa Specialized Hospital, Addis Ababa, Ethiopia: 2020,G.C. (Mixed method study)
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Date
2020-06
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Addis Ababa University
Abstract
Background: In medical scenarios like cancer parents level of participation in treatment decision for their child to enhance a better outcome is significant. Though in Ethiopia little is known about the decisional role of parents. Due to that this study aimed to clarify the extent to which parents involve in treatment decision making for their child and also explores different factors that determine the treatment decisional role.
Objective: To assess parental role and associated factors in pediatric cancer treatment decision making at Tikur Anbessa Specialized Hospital, Addis Ababa, Ethiopia 2020 GC.
Methods: A total of 167 parents were enrolled in the cross sectional study using a census method and additional 11 parents were purposively selected for the qualitative phenomenological study. The study was employed from April to May 2020 G.C. at Tikur Anbessa Specialized Hospital Pediatric Oncology department. Quantitative data was entered to EpiData version 4.6
and exported to SPSS version 25 for analysis. Descriptive frequencies and percents were used and binary logistic regression assessed statistical association. After the qualitative in-depth interview the data was transcribed and translated to Amharic then analyzed using thematic analysis method. ATLAS .ti 7 software was employed to aid coding process.
Result: The actual role of parents in treatment decision making was 129(77.2%) for passive, 37(22.2%) for collaborative and 1(0.6%) for active. Also 138 (82.6%) of the participants reported having their preferred role. Interpersonal trust and parental informational preference were statistically significant factors. Three broad themes were identified for factors affecting
parental role in treatment decisional role in the qualitative study which are parent health care provider relationship factor, parental factors and clinical factors.
Conclusion and recommendation : Parental role in treatment decision making was found to be passive and multitude of factors were identified affecting their roles so there needs to be improvements in enhancing more roles for parents.
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Actual role, preferred role, treatment decision, interpersonal trust, communication.