The lived experience of individuals with communication disorders associated with Parkinson’s disease: The case of Parkinson Patients Support Organization- Ethiopia
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Date
2024-07
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Addis Ababa University
Abstract
This qualitative study explores the experiences of individuals in Ethiopia who have communication disorders associated with Parkinson's disease (PD). The study aims to gain insights into the specific communication challenges they face, the psychosocial impacts they encounter, additional difficulties they experience, and the coping mechanisms they employ. The research methodology employed was qualitative, with a particular emphasis on a descriptive phenomenological research design. Data was collected through semi-structured interviews with nine participants who were purposively selected from PPSO-E. The data analysis was conducted manually, focusing on thematic areas derived from the interview guides and participants' responses. The findings reveal a range of difficulties related to communication disorders in PD, including reduced voice volume and quality, articulation issues, changes in speech rate, and cognitive-linguistic impairments. The study also uncovers negative implications for emotional well-being, psychological well-being, and economic stability, including misconceptions and stigma. Additionally, physical symptoms are identified, which can exacerbate psychosocial and economic hardships. Participants employed coping mechanisms such as speech and language therapy, social support, and compensatory strategies to enhance their communication abilities. Based on the study's findings, it is recommended that the relevant federal ministries and organization become involved in promoting and coordinating interventions for individuals with PD. Implementing comprehensive strategies to address communication disorders in PD can significantly improve individuals' quality of life, facilitating social connections and active participation.
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communication disorders associated with Parkinson’s disease