Stigma among stroke survivors in Ethiopia: Experience from a tertiary hospital Tikur Anbessa Specialized hospital, Addis Ababa, Ethiopia.

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Date

2021-11

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Addis Abeba University

Abstract

Background: Stigma among neurologic disease is a widely recognized global health issue. The negative impact it has on different neurologic diseases has been described. Although stroke survivors have different degree of stigma which may contributes to negative outcomes, there is shortage of study on stigma among stroke survivors and its predictors, especially in low and middle income countries. Study title: Stigma among stroke survivors: Experience from a tertiary hospital in Addis Ababa, Ethiopia Objective: To assess the prevalence of stigma and its associated factors among stroke survivors having a follow up at the Neurologic Out-patient Clinic in Tikur Anbessa Specialized Hospital. Methods: Institution based quantitative cross sectional study was conducted among 123 stroke patients having a follow up at Tikur Anbessa Specialized Hospital Neurology Out-patient Clinics. Data were collected by interviewer administered questionnaire. Stigma was measured using Stigma scale for chronic illness (SSCI-8) tool and included self, family, and community perceived stigma. Depression was assessed using Patient Health related Questionnaire (PHQ9), and functional status using modified Rankin Scale. Data were entered and analyzed using Statistical Package for Social Sciences (SPSS V25) software package. Binary logistic regression and multinomial logistic regression was used. Adjusted odds ratios with 95% confidence interval were used to identify associated factors with perceived stigma. Results: Overall, the prevalence of perceived stigma was 55%. For the perceived family and community, it was 17.9%, and 13.8% respectively. Functional disability [moderate to severe disability (AOR=6.88, CI: 2.257, 22.46) P=.001.], Depression (AOR=19, CI: 2.24, 161.34)P=.007 and residual weakness (AOR=9.71, CI: 0.94, 94.95) P=.051were factors associated with perceived stigma in stroke patients. Conclusion and recommendation: Around half of stroke survivors who participated in this study described some form of perceived stigma. The personal perceived stigma was higher when compared to family or community perceived stigma. Factors associated with perceived stigma were Depression, residual weakness post stroke, and moderate to severe disability functional status. The rehabilitation services for patients with stroke should be strengthened. These should include physical, emotional, and social aspect of disabilities. In addition, establishing patient support groups for stroke survivors, and educating the community about stroke may be important to address stigma.

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Keywords

Stroke,Stigma,Neurologic disease

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