The Lived Experience of Mother of Children with Cerebral Palsy towards Communication Disorder in St. Paul's Hospital Millennium Medical College in Addis Ababa
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Date
2024-06
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Addis Ababa University
Abstract
Background: Cerebral Palsy is a neurological disorder caused by damage to the developing
brain. Cerebral palsy can lead to a range of communication disorders, such as speech and
(receptive and expressive language disorders).
Objective: The overall purpose of this study aimed to explore and understand the experiences of
mothers of children with cerebral palsy towards communication disorder St. Paul's Hospital
Millennium Medical College in Addis Ababa, Ethiopia
Methods: Qualitative research approach with phenomenology research design was used. Data
was collected from purposively selected 8 participants through semi-structured interviews. The
researchers utilized heterogeneous purposeful sampling techniques. Qualitative data analysis was
utilized.
Results: The research explored the lived experiences of mothers with children facing
communication challenges as a result of cerebral palsy. In the recognition of communication
disorders, there was a wide range of ages (Two mothers recognized communication disorder at
nine months and the rest where at (two -four years) .In the statement of their children's speech
and language by describe what your child is able or unable to do during communication, six
participants mothers expressed that their children don't talk and it's hard to communicate with
them because they can only help them and do things for them when they cry. All mothers noticed
their children struggling to communicate effectively and difficulties in expressing their needs.
About communication challenges with their children, seven participants shared that their kids
don‟t directly ask for what they want. As a result, these parents feel like they‟ve exhausted. All
mothers expressed their aspirations for their children to communicate effectively & to express
their need.
Conclusions; The study findings identified that the challenges mothers face in communicating
with their children with cerebral palsy has profound emotional and practical hurdles experienced
by mother. The aspirations of the mothers reflect for their children to communicate effectively,
expressing their need and for access to comprehensive support services.
Recommendations;. Governments and healthcare systems should prioritize making speech
therapy services, early intervention programs, and Offering psychological support, counselling
services for parent.
Public awareness campaigns should aim to reduce stigma and misconceptions surrounding
communication disorders.
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Lived Experience of Mother of Children with Cerebral Palsy towards