Prevalence and predictors of stress and social impact among parents with Neural tube defect children who have follow up in public hospitals, Addis Ababa, Ethiopia 2021
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Date
2021-06
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Addis Abeba University
Abstract
Background- Neural Tube Defects are congenital anomalies of the brain, spinal cord and their
surrounding structures. Parents face extreme stress at the diagnosis of NTDs since they are
challenged with either the misery of a termination, stillbirth or the lifelong psychological, social
and financial challenges of caring for a child with NTDs.
Objective-To determine prevalence and predictors of stress and social impact among parents
with Neural tube defect children who have follow up in public hospitals, Addis Ababa, Ethiopia
2021.
Method- Institution based cross sectional study was implemented on 369 parents with neural
tube defect children in three selected Addis Ababa public hospital by using purposive sampling
technique. A structured questionnaire was used for data collection on socio-demographic
characteristics and other independent variables, data on stress was collected by Parent Stress
Index Short Form Likert scale and social impact data was collected using medical outcome study
social support survey Likert scale tool. Data was entered and coded with Epi data v4.6 and
cleaned and analyzed using SPSS 25. Level of significance was determined using p<0.05. Final
results is presented by text, graph, and tables.
Result- All 369 respondents were participated in this study and the response rate was 100%.
The mean age of the respondent was 29.38 ± 5.64. Eighty one percent of the respondents were
mothers. Among the children 57.5% were male and 19.5% of children with the age of 2-5 years.
17.6% of the parents with neural tube defect children were stressed and 26.3% had social impact.
Parental stress were associated with motherhood, urine incontinence, shunt insertion and use of
clean intermittent catheterization, while parental social impact associated with higher parental
age, bowel dysfunction, use of clean intermittent catheterization, shunt utilization and
paraplegia.
Conclusion and Recommendation- There is stress and social impact among parents with
neural tube defect children and its extremely under-recognized and not managed by health care
professionals. Study finding recommend that stress and social impact of parents with neural tube
defect children should be diagnosed early and managed appropriately.
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Keywords
Neural tube defect, stress, social impact, parents