Browsing by Author "Tamire, Mulugeta(MPH, PhD Student )"
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Item One Stone, Two Birds: The Role of Families in Stroke Patients’ Care: A qualitative study among Stroke Survivors at Tikur Anbessa Specialized Hospital(Addis Abeba University, 2021-11) Adane, Emnet; Dr.Zenebe, Guta(MD, Consultant Neurologist); Dr.Demissie, Hanna (MD, Consultant Neurologist and Department Head); Dr.Gugssa, Seid (MD, Consultant Neurologist); Dr.Nuri, Hussien(Consultant Neurologist); Tamire, Mulugeta(MPH, PhD Student )Background: Stroke is the second leading cause of death and third leading cause of disability worldwide. After three months of sustaining stroke, 26% of stroke survivors require long-term care for long-term disabilities which includes mostly hemiparesis, speech problem, swallowing problem, sphincter dysfunction, dementia and depression for which there will be dependence for performing activities of daily living. So far, the role of families in stroke care is not studied in the context of Ethiopia but it is obvious that they have to adapt themselves to take care of their patient with what they know and think is caring. Objective: This study aims at explaining the role of families in stroke patients’ care among stroke survivors at Tikur Anbessa Specialized Hospital. Methods: A qualitative study was conducted using qualitative content analysis approach. We used a purposive sampling finding the maximum variation in participants by age, gender, residence, educational level, relationship to the patient, occupation, duration of stroke and monthly income. An in-depth interview using a semi-structured questionnaire was conducted to collect data by voice recording and the recording was transcribed verbatim then translated in to English language. Analysis was performed using an opencode software version 4.03. Result: A total of 26 participants were included in the in-depth interview and saturation was achieved. There were 20 female and 6 male participants. Majority of the females were daughters (8 participants) of the patients. The caregivers’ role included fulfilling patient’s self-care with hygiene, physical support in ADL, psychological and financial support. The challenges experienced by the caregivers’ were problems with their physical well-being, psychological disturbances and disruption of their social interaction. There are challenges due to financial crisis, inefficient health care facilities like pharmacies, laboratory services and unavailable rehabilitation centers. On top of these there was a challenge from knowledge gap from lack of proper health education provision. The study also found out the common support systems of the care givers which include families, friends, health professionals and others. There was a better recovery in patients with provision of rehabilitation and optimistic life styles like healthy diet, treatment adherence, continuation of follow up visits and provision of a health insurance free card for government services. Conclusion: family caregivers have a notable role in the care of post-stroke patients’ and there are undeniable challenges that are experienced by the caregivers which should also be taken in to consideration in planning a patient’s post-stroke care.